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State Legislative Initiatives

Overview

The gift of a human organ for transplant is a uniquely precious gift. It is the most personal and sensitive gift a person can make, and it is literally a gift of life, from the donor to the desperately ill recipient.  Needless to say, these gifts must be recovered with maximum sensitivity, discretion and skill and never for profit. 

The nation’s long-standing community based non-profit organ procurement system, the envy of the world, is under assault from private forces and profiteers.  It must be protected.

Model State Legislation

(a) It shall be unlawful for any person to knowingly acquire, receive, sell, promote the transfer of, or otherwise transfer any human organ, for purposes of transplantation, for valuable consideration.

(b) It shall be unlawful for any person to knowingly acquire, receive, sell or facilitate the transfer for valuable consideration of any personally identifiable information concerning a person, or the survivors of a person whose organs have been offered or donated pursuant to [Revised Anatomical Gift Act of this State] if such information was created, gathered, assembled, utilized or disseminated for the purpose of facilitating the person’s anatomical gift or potential anatomical gift.

(c) For purposes of this section, the following definitions apply:

(1) “Human organ” includes, but is not limited to, a human kidney, liver, heart, lung, pancreas, or any other human organ or nonrenewable or nonregenerative tissue except plasma and sperm.

(2) “Valuable consideration” means financial gain or advantage, but does not include the reasonable costs associated with the removal, storage, transportation, and transplantation of a human organ, or reimbursement for those services, or the expenses of travel, housing, and lost wages incurred by the living donor of a human organ in connection with the donation of the organ.

(d) No act respecting the non-sale donation of organs or other non-sale conduct pursuant to or in the furtherance of the purposes of the [Revised Uniform Anatomical Gift Act] including acts pursuant to anatomical gifts offered under [organ donor registry law] shall be made unlawful by this section.

(e) This section shall not apply to the person from whom the organ is removed, nor to the person who receives the transplant, or those persons' next-of-kin who assisted in obtaining the organ for purposes of transplantations.

(g) Any person who violates subdivision (a) or (b) shall be punished by a fine not to exceed fifty thousand dollars ($50,000), or by imprisonment for three, four, or five years, or by both that fine and imprisonment.

The State of New Jersey and the City Councils of Philadelphia, Newark and Wilmington have all gone on record at SID&T’s urging to support proper reform.

In 2021, Be It Resolved by the General Assembly of the State of New Jersey
1. This House condemns the enforcement of any regulation purporting to assess any organ procurement organization’s performance based upon standards derived from inaccurate and invalid data. Read the New Jersey Resolution →

In 2022, the City of Philadelphia
RESOLVED, BY COUNCIL OF THE CITY OF PHILADELPHIA, That it hereby calls on Secretary Xavier Becerra and the U.S. Department of Health & Human Services to reconsider the implementation of a rule instituted by the prior administration that could upend our nation's system of organ procurement, particularly in communities of color, and to include the vast, specific needs of the organ transplant system in analyzing and improving the metrics and outcomes of organ procurement organizations. Read the City of Philadelphia Resolution →

In 2022, the City of Newark
NOW, THEREFORE, BE IT RESOLVED BY THE MUNICIPAL COUNCIL OF THE CITY OF NEWARK, NEW JERSEY, THAT:

1. The Newark Municipal Council of the State of New Jersey respectfully urges the U.S. Secretary of the Department of Health and Human Services and the Administrator for the Centers for Medicare and Medicaid Services (CMS) to reconsider implementation of new rules revising the outcome measure requirements for and establishing procedures to decertify and create competitive bidding requirements for organ procurement organizations. Read the City of Newark Resolution →

In 2023, the City of Wilmington
BE IT FURTHER RESOLVED that this Council encourages the Department of Health and Human Services and the Centers for Medicare and Medicaid Services to give full consideration to the guidance set forth by the 2022 National Academies of Science, Engineering and Medicine (NASEM) report that included evaluations and recommendations to prevent inequities and racial disparities in the procurement, donation, and transplantation of organs. Read the City of Wilmington Resolution →